Living with Meniere's

Living with Meniere's

In my prayer group, I have been petitioning about the buzzing and noise on my right ear, nausea, and dizziness for the last 14 months.  In November and December 2016, it became worst and my illness was coupled with spinning sensation of a vertigo. 

I was knock down several times by the vertigo and was not able to work for days, and serving my family and friends became very difficult.

I spent too much money and used up all our family deductibles to pay my treatment from a specialist at St Louis ENT Health but to no relief. I dismissed that doctor, and I am now seeing a specialist at Washington University. 

The new doctor diagnosed my illness as Meniere's disease.  It is a permanent disorder of the inner ear that causes episodes in which you feel as if you're spinning, and you have fluctuating hearing loss with a progressive, ultimately permanent loss of hearing, ringing in the ear (tinnitus), and sometimes a feeling of fullness or pressure in your ear.  

At this point to relieve symptoms and minimize the long-term impact on my life:

  • I was given a special daily medication called BetaHistine that is compounded by Washington University to stop the vertigo. However, the other medication (water pill) is not helping the tinnitus.  On my next visit, a steroid injection will be administered. And if that will not work, the next step is put a drain in my ear or to cut the nerve.
     
  • I was also advised to avoid the following in my system:
    C - Caffeine
    A - Alcohol
    S - Salt
    T - Tension 

I've stop drinking coffee, and avoids wine and beer at gatherings.  And, I follow the Washington University School of Medicine sodium restricted diet

The tension / stress is the one that flares up my vertigo especially when many events and activities are happening all at the same time e.g. Theresa's school and extracurricular activities, my workload, and my service to the community.

My doctor advised that I stop multi-tasking and accepting more responsibilities if they would add up to my stress. 

Slowing down will definitely change my lifestyle, and I believe it will help myself, my family, and my community in the long run.  

Now, I am trying to find the meaning to life that it is not a sprint, but a marathon. I may take two steps backward, one step forward, and it does not matter how slow I go, just as long I don’t stop for God is my refuge, my rock, my trust, and my deliverer. I will be fine!

Category: 
Health/Survivor
Rating: 
Average: 5 (8 votes)